Estonian Genome Project, University of Tartu (The Estonian Biobank)
Topic of the practice
research infrastructure for the studies concerning causes and mechanisms of the common complex diseases.
Good Practice Information
The idea of the Estonian Genome Project was put forward in 1999 by the Estonian Genome Centre Foundation; in 2000 the Human Gene Research Act was approved by the Estonian Parliament (Riigikogu) and in 2002 data collection started after fundraising by the private company EGeen Inc., who in most part financed the collection of the first 10 000 gene donors and infrastructure build-up. After the separation from the private company due to the funding difficulties, the Estonian government transferred the EGP foundation into the structure of the University of Tartu and started to provide finances.
Issues addressed: Transparent legal and financial situation, excellent ethical principles, sound scientific design and openness for scientific cooperation.
Objective of the EGP of UT is to develop one of the best biobanks in Europe and to provide a research infrastructure for the studies concerning causes and mechanisms of the common complex diseases.
Evidence of success
EGeen International Corporation – for profit corporation formed to access additional funds and deliver tangible pharmaceutical/health care products.
Contact details to obtain further information on the practice
Tartu Science Park
Annex completed on: 03-30-2011